10/21/2023 - 73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & More



Jo Southall Instagram https://www.instagram.com/jboccytherapy/?hl=en 

Jo Southall on The Rest Room Podcast: Pacing: A guide for people who’d rather be doing other things on Apple Podcasts, available at: podcasts.apple.com/gb/podcast/paci…i=1000550501384 (This is the first episode in a series) 

Jo Southall's Youtube channel available at: www.youtube.com/@JBOccyTherapy 

Jo Southall on workplace adjustments: www.youtube.com/watch?v=3yjyuGfxTY8 

Jo Southall on occupational therapy: www.youtube.com/watch?v=_NnWsZszG6g 

Article on the "Siberian Ice Princess" Mummified Remains: D.I. Abrams, M.D., Integrating Cannabis Into Clinical Care, Curr. Oncol. 2016, available at www.ncbi.nlm.nih.gov/pmc/articles/PMC4791148/ (see introduction) 

10/06/2023 - 72 - Remembering Stephanie Aston - with Punteha van Terheyden

Punteha van Terheyden - https://www.vtfeatures.co.uk/ 

'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised' - Story by Punteha van Terhayden - https://www.mamamia.com.au/stephanie-aston-death/ 

People magazine article about Stephanie Aston - https://people.com/ehlers-danlos-new-zealand-stephanie-aston-dies-7966639 

Another recent article by Punteha: https://metro.co.uk/2023/10/04/it-costs-a-bomb-but-cannabis-oil-has-allowed-me-to-stand-up-again-19589151/

06/30/2023 - 71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT)



06/15/2023 - 70 - Highly Sensitive Persons, Neurodivergency, ADHD & Advocacy: Donna Irene

Instagram: www.instagram.com/chronicandcapable

TikTok: chronicandcapable

Dr. Rodney Grahame quote: https://www.the-rheumatologist.org/article/function-despite-pain/4/?singlepage=1

Dermal fibroblast article: https://pubmed.ncbi.nlm.nih.gov/36552803/

05/27/2023 - 69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More

TCAPP Website https://tcapp.org/ 

TCAPP Summer Pain Camp https://tcapp.org/summer-pain-camp/ 

Fundraiser for Documentary: https://openeyepictures.com/complicated www.pathwaystotrust.org/initiatives https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.html 

When the Helping Hand Hurts: How Medical Child Abuse Charges Are Undermining Parents’ Decision Making Rights over Children’s Medical Care by Maxine Eichner https://aaml.org/wp-content/uploads/MAT102-1.pdf 

05/20/2023 - 68 - Mitch Martow Update on Advocacy & More

Bend or Break documentary

Instagram: @mitchmartow

Instagram: @_bend_or_break_


03/20/2023 - 65 - Taylor Goldberg on Hypermobility


Instagram:  @thehypermobilechiro 

03/04/2023 - 64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & Diet


Instagram: @hypermobility.dietitian

02/22/2023 - 63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80

Instagram: @zebracornmd


01/31/2023 - 62 - Camille Schrier on Advocacy, Awareness & More


Instagram:  @camilleschrier 

12/12/2022 - 61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of Hypermobility

Instagram:  @dr.melissakoehl.pt



12/03/2022 - 60 - Zinc & Hypermobility: Fiona Sullivan & Danielle Humphreys

Instagram:  @fiona_my_eds (Fiona)

Instagram: @edsexpertpatient (Danielle) 

11/27/2022 - 59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in Men

11/21/2022 - 58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining Hypermobility


Instagram:  @hyp_access

Instagram:  @audrewirtanen

Instagram:  @ltuthall 

11/12/2022 - 57 - Victoria Daylor: From Dancer to Pre-Med with hEDS


Instagram: @victoria.daylor 

10/28/2022 - 56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & Diet 

Instagram:  @hypermobility.dietitian


10/26/2022 - 55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3) 


10/07/2022 - 53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and More



10/01/2022 - 52- John Ferman of EDS Awareness: EDS is Not All in the Head

EDS Awareness site - https://www.chronicpainpartners.com/

EDS is not all in your head article - https://www.chronicpainpartners.com/eds-is-not-all-in-the-head/

Healthcare Providers CME Programs - https://ehlers-danlos-cme.org/

EDS Leadership Program - http://www.leadeds.com/

EDS Awareness Newsletters - https://www.chronicpainpartners.com/eds-awareness-educational-programs-and-newsletter/ 

09/30/2022 - 51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're Hypermobile

Holding it All Together Book: www.holdingitalltogether.com/

Christie Cox’s Patient Advocacy: www.journey2joyous.com

Scheduling A Free Initial Consultation: calendly.com/journey2joyous/15min

08/20/2022 - 50 - Dr. Pradeep Chopra (Part 2) POTS, MCAS and More


08/06/2022 - 49 - Hannah Ensor (UK) on the HMSA, Stickman Communications, and More 

HMSA: www.hypermobility.org/

Stickman Communications: stickmancommunications.co.uk/ 

07/22/2022 - 48 - Mitch Martow: Bend or Break Documentary and Life with EDS 

Bend or Break Documentary on YouTube: www.youtube.com/watch?v=5toRNvFug3Y

Mitch's TedX Talk: www.youtube.com/watch?v=OMCPfVCAIM8

Mitch's YouTube page: www.youtube.com/channel/UCodj1ddsIFPN90-jyExje8w

POV Magazine article: povmagazine.com/bend-or-break/

Mitch's Bend or Break Blog: breakorbend.blogspot.com/

Instagram: @_bend_or_break_

Instagram: @mitchmartow

Facebook: mitch.martow 

07/22/2022 - 47 - Dr. Jeffrey Boris on Two Decades of Treating POTS and Related Conditions 



06/18/2022 - 46 - Dr. Pradeep Chopra: Overview on EDS and Pain (Part 1) 

06/10/2022 - 45 - Isobel Knight (UK) on Decades of Work Studying and Writing Books on Hypermobility

Wiley Online LIbrary: The role of narrative medicine in the management of joint hypermobility syndrome/Ehlers–Danlos syndrome, hypermobility type

Twitter  isobelknight2


Comments from author Isobel Knight 

05/31/2022 - 44 - Emily Rich OT on Occupational Therapy for EDS/POTS


Instagram:  @emilyrichot

05/12/2022 - 43 - Libby Hinsley on her New Book on Yoga and Hypermobility 


Instagram:  @libbyhinsleypt 

05/01/2022 - 42 - Kate Skinner, PT, Discusses Her Practice and Perspective 


Instagram:  @hypermobility_solution

Facebook Page

Facebook Group

YouTube channel

04/08/2022 - 41 - Lilian Holm (@hypermobilitydoctor) Discusses Her Comprehensive and Unique Model of EDS Care 

03/23/2022 - 40 - Exciting Research on EDS in Animals: Dr. Heather Gray-Edwards and Dr. Abby McElroy

Dr. Gray-Edwards' Lab at UMASS: https://grayedwardslab.umassmed.edu/ 

Instagram:  @reed_eds

03/05/2022 - 39 - Dr. Megan Barker (@hypermobilityhealthcoach) and her Physical Therapy/Health Coaching Practice

Instagram:  @hypermobilityhealthcoach

Rhythm Health LLC

02/08/2022 - 38 - Ryann Mason (chronically_ry), Nurse, Advocate, and Miss Wheelchair Virginia 2020-2021

A Rare Disorder Linked Miss America and Miss Wheelchair Virginia: Now They’re Banding Together to Help the Disability Community (Forbes Magazine) December 1, 2020

Instagram:  @chronically_ry

12/31/2021 - 37 - Candidate Gene for hEDS? - Interview with Dr. Russell Norris & Cortney Gensemer

Norris Lab | College of Medicine | MUSC

MUSC researchers announce gene mutation discovery associated with EDS | MUSC | Charleston, SC

10/16/2021 - 36 - Discussing Disjointed: Interview with Dr. Richard Barnum - Psychiatric Misdiagnoses

10/01/2021 - 35 - Miss America (Camille Schrier) Discusses Life as a Pharmacy Student with EDS

07/13/2020 - 34 - Hypermobile Horses (and Dogs, and Cats, and More!): Interview with Dr. Abby McElroy, DVM

Cat with Ehlers-Danlos syndrome finds loving home with researcher who has the same condition

Instagram - Reed the Cat with EDS

Article, First Evidence for an Association Between Joint Hypermobility and Excitability in a Non-Human Animal, Dogs

06/05/2020 - 33 - Esther Gokhale Interview: Primal Posture 

Episode Transcript

Facebook   Twitter   Instagram

Gokhale Method® - Primal Posture™ for a Pain-Free Life

TedX Talk 

8 Steps to a Pain-Free Back - Amazon.com 

Back Pain: The Primal Posture Solution DVD - Amazon.com 

05/17/2020 - 32 - Coping with Coronavirus - Interview with Dr. Eric Phillippi 

Ehlers-Danlos Society - What is Covid-19 (Coronavirus)

Medical Procedures of Wisconsin

04/15/2020 - 31 - Karina Sturm Interview

03/07/2020 - 30b - Interview with Dr Brad Tinkle - Part 2 

01/24/2020 -  30a - Interview with Dr Brad Tinkle - Part 1

Dr Brad Tinkle


Dr. Tinkle available for Medico-Legal Consulting (for medical providers or attorneys only)

Amazon.com - Books by Dr. Brad Tinkle

Joint Hypermobility Handbook 10th Anniversary Edition: A Guide for the Issues & Management of Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

Issues and Management of Joint Hypermobility: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome

Bendy Wendy and the (Almost) Invisible Genetic Syndrome: A story of one tween's diagnosis of Ehlers-Danlos Syndrome / joint hypermobility

Harry McQuinn "King of the Midgets": Dirt Track, Sprint Car, and Midget Racer; Airplane Pilot; and Race Official

12/15/2019 - 29 - Genetic Pearls: Interview with Paldeep Atwal, M.D. 

Atwal Clinic


National Center for Biotechnology Information Papers

12/06/2019 - 28 - Disability Accommodations & Finding Purpose After Tragedy 

WI Legislators - Representative Jimmy Anderson (D-Fitchburg)

Facebook    Twitter

The U.S. Equal Employment Opportunity Commission - Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act

Americans with Disabilities Act - Access To Medical Care For Individuals With Mobility Disabilities

Americans with Disabilities Act - ADA Update: A Primer for State and Local Governments

Americans with Disabilities Act - ADA Update: A Primer for Small Business

11/29/2019 - 27 - Ranitidine Recall: What You Need to Know 

11/23/2019 - 01 - Hypermobility 101  - re-released episode #1

2017 EDS International Classification

11/15/2019 - 26 - Troublesome Teeth: Interview with dentist Dr Liberty Boucher 

Meet Dr. Boucher & the Team at University Hills Dental

11/01/2019 - 24 - Jeannie Di Bon Breathing Episode 

10/28/2019 - 23 - Interview with Valerie, Cirque du Soleil performer 

International Association for Dance Medicine & Science

10/18/2019 - 22a - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 1 

22b - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 2 

Melissa Wells: From Vegas Showgirl to Chief of Mission - Association for Diplomatic Studies and Training

10/11/2019 - 21 - Inflammation, Immunity and Ideal Nutrition: Interview with Jennifer Varga, M.P.H., R.D 


10/04/2019 - 20 - Advocacy, awareness & alternative communication styles: Interview with Maggie Buckley 



09/27/2019 - 19 - Menses, Mast Cells and Migraines. Interview with Lila Rosenthal, MD 

YouTube - Dr Lila Rosenthal

Successful mast-cell-targeted treatment of chronic dyspareunia, vaginitis, and dysfunctional uterine bleeding- NCBI

The Endometriosis Association

Lara Briden - The Period Revolutionary

MigreLief® - nutritional support for chronic migraine sufferers

Recommended reading

The Last Best Cure - Donna Jackson Nakazawa

Childhood Disrupted: How Your Biography Becomes Your Biology, and How You Can Heal - Donna Jackson Nakazawa

Period Repair Manual - Lara Briden ND

09/13/2019 - 17 - Joints & Jaws: Interview with Dr John Mitakides, about jaw pain, TMJ and options for treatment 


Youtube - John Mitakides - Overview TMJ and EDS

Facebook  Twitter

09/06/2019 - 16 - Food, fatigue and function: Interview with Dr Jyothi Rao about the importance of gut health. 

Dr. Jyothi Rao - Shakthi Health & Wellness

Finding Balance: Empower Yourself with Tools to Combat Stress and Illness


08/30/2019 - 15 - Moderation, Men's Health and Motivation:  Interview with Dr. Stephen Brewer, Medical Director, Canyon Ranch Health Resorts

Canyon Ranch Resort, Tucson - Dr Stephen Brewer

Amazon.com - books by Stephen C Brewer, MD

What Happened to Moderation?: A Common-Sense Approach to Improving Our Health and Treating Common Illnesses in an Age of Extremes

The Everest Principle

The Canyon Ranch Guide to Men's Health: A Doctor's Prescription for Male Wellness

08/23/2019 - 14 - Interview with Jon Rodis, National Disability and Medical Advocate for Rare Disorders 

Living with Marfan Syndrome

Youtube - Social Security Disability Presentation

08/16/2019 - 13 - Interview with John Ferman, Founder of EDS Awareness (a.k.a. Chronic Pain Partners)

EDS Awareness aka Chronic Pain Partners 

EDS Awareness - YouTube

Facebook   Twitter   Instagram

08/09/2019 - 12 - Mast Cells and Hormones: Interview with Dr. Tania Dempsey 

Dr. Tania Dempsey | New York | Lyme Disease Specialist

Successful mast-cell-targeted treatment of chronic dyspareunia ... - NCBI

Dr. Tania Dempsey - YouTube

Facebook   Twitter   Instagram

08/02/2019 - 11 - Interview with Dr. Lawrence Afrin, Expert in Mast Cell Activation Syndrome 

Mast Cell Research

Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity

Dr. Lawrence Afrin - Mast Cell 101 Presentation

Dr. Lawrence Afrin - Armonk Integrative Medicine

07/26/2019 - 10 - Interview with Jeannie Di Bon, Movement Therapist and Hypermobility Specialist

Jeannie Di Bon | Movement Therapist and Hypermobility Specialist

Jeannie Di Bon - YouTube

Amazon.com - Jeannie Di Bon

Facebook    Twitter    Instagram 

07/12/2019 - 08 - Beat the Heat! Managing Symptoms When the Temperature Rises 

07/05/2019 - 07 Bonus - What's in a Name - Why the Podcast is Called the Hypermobility Happy Hour 

07/05/2019 - 07 - Paradoxes of EDS 

06/21/2019 - 06 - Who, What, When, Where, Why and How of Having Hypermobility Disorders 

06/14/2019 - 05 - Diagnosing Hypermobility Disorders including Hypermobile Ehlers-Danlos Syndrome 

06/07/2019 - 04 - Causes and Influences of Hypermobility 

06/01/2019 - 03 - What Does a Hypermobile Patient Look Like? 

05/24/2019 - 02 - Low-dose Naltrexone 

05/24/2019 - 01 - What is Hypermobility?