Find us on iTunes, SoundCloud and Spotify
01/24/2020 - 30a - Interview with Dr Brad Tinkle - Part 1
Amazon.com - Books by Dr Brad Tinkle
12/15/2019 - 29 - Genetic Pearls: Interview with Paldeep Atwal, M.D.
National Center for Biotechnology Information Papers
12/06/2019 - 28 - Disability Accommodations & Finding Purpose After Tragedy
WI Legislators - Representative Jimmy Anderson (D-Fitchburg)
Americans with Disabilities Act - Access To Medical Care For Individuals With Mobility Disabilities
Americans with Disabilities Act - ADA Update: A Primer for State and Local Governments
Americans with Disabilities Act - ADA Update: A Primer for Small Business
11/29/2019 - 27 - Ranitidine Recall: What You Need to Know
11/23/2019 - 01 - Hypermobility 101 - re-released episode #1
2017 EDS International Classification
11/15/2019 - 26 - Troublesome Teeth: Interview with dentist Dr Liberty Boucher
Meet Dr. Boucher & the Team at University Hills Dental
11/09/2019 - 25 - Clair Francomano, MD, shares about her research and new clinical practice.
Ehlers-Danlos Society: https://www.ehlers-danlos.com
EDS ECHO: https://www.ehlers-danlos.com/echo/
EDS Echo Patient Expert/Advocacy program: https://www.ehlers-danlos.com/patient-expert-eds-echo/
EDS HEDGE Study: https://www.ehlers-danlos.com/hedge/
2017 papers describing the work of the International Consortium in 2016 (March issue of the American Journal of Medical Genetics): https://www.ehlers-danlos.com/2017-eds-international-classification/#article
hEDS diagnostic checklist: https://www.ehlers-danlos.com/heds-diagnostic-checklist/
Global Registry (sign up to participate in research!): https://www.ehlers-danlos.com/eds-global-registry/
2020 Global Learning Conference: https://www.ehlers-danlos.com/2020-arizona/
Announcement about funding for the Co-morbidity coalition: https://www.ehlers-danlos.com/pcori-funding-award/
Printable brochures from the Ehlers-Danlos Society: https://www.ehlers-danlos.com/brochures/
- Tri-fold Brochure – “What are the Ehlers-Danlos syndromes?” (US letter sized); click here for A4 sized
- Tri-fold Brochure – “What are the hypermobility spectrum disorders?” (US letter sized); click here for A4 sized
- Poster – “What are the Ehlers-Danlos syndromes?” (11″x17″); click here for A3 sized
- Poster – “What are the hypermobility spectrum disorders?” (11″x17″); click here for A3 sized
- PowerPoint – “The EDS/HSD 2017 Classification” and PDF with notes – “The EDS/HSD 2017 Classification”
- Give your medical professionals a hand with this 2017 Ehlers-Danlos Classification Handout
- Inform your health professionals about the EDS Project ECHO program
Indiana Ehlers-Danlos clinic: iuhpgenetics@iuhealth.org; 317-944-3966
11/01/2019 - 24 - Jeannie Di Bon Breathing Episode
10/28/2019 - 23 - Interview with Valerie, Cirque du Soleil performer
International Association for Dance Medicine & Science
10/18/2019 - 22a - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 1
22b - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 2
10/11/2019 - 21 - Inflammation, Immunity and Ideal Nutrition: Interview with Jennifer Varga, M.P.H., R.D
www.wisconsinintegrativepainspecialists.org/jen-s-blog
10/04/2019 - 20 - Advocacy, awareness & alternative communication styles: Interview with Maggie Buckley
09/27/2019 - 19 - Menses, Mast Cells and Migraines. Interview with Lila Rosenthal, MD
Lara Briden - The Period Revolutionary
MigreLief® - nutritional support for chronic migraine sufferers
Recommended reading
The Last Best Cure - Donna Jackson Nakazawa
Period Repair Manual - Lara Briden ND
09/20/2019 - 18 - Anxiety, aberrant chocolate intake & atypical joint laxity: Interview with Dr Antonio Bulbena
Anxiety and joint hypermobility: An unexpected association
09/13/2019 - 17 - Joints & Jaws: Interview with Dr John Mitakides, about jaw pain, TMJ and options for treatment
Youtube - John Mitakides - Overview TMJ and EDS
09/06/2019 - 16 - Food, fatigue and function: Interview with Dr Jyothi Rao about the importance of gut health.
Dr. Jyothi Rao - Shakthi Health & Wellness
Finding Balance: Empower Yourself with Tools to Combat Stress and Illness
Canyon Ranch Resort, Tucson - Dr Stephen Brewer
Amazon.com - books by Stephen C Brewer, MD
The Canyon Ranch Guide to Men's Health: A Doctor's Prescription for Male Wellness
08/23/2019 - 14 - Interview with Jon Rodis, National Disability and Medical Advocate for Rare Disorders
Youtube - Social Security Disability Presentation
08/16/2019 - 13 - Interview with John Ferman, Founder of EDS Awareness (a.k.a. Chronic Pain Partners)
EDS Awareness aka Chronic Pain Partners
08/09/2019 - 12 - Mast Cells and Hormones: Interview with Dr. Tania Dempsey
Dr. Tania Dempsey | New York | Lyme Disease Specialist
Successful mast-cell-targeted treatment of chronic dyspareunia ... - NCBI
08/02/2019 - 11 - Interview with Dr. Lawrence Afrin, Expert in Mast Cell Activation Syndrome
Dr. Lawrence Afrin - Mast Cell 101 Presentation
Dr. Lawrence Afrin - Armonk Integrative Medicine
07/26/2019 - 10 - Interview with Jeannie Di Bon, Movement Therapist and Hypermobility Specialist
Jeannie Di Bon | Movement Therapist and Hypermobility Specialist
07/19/2019 - 09 - Interview with Lara Bloom, International Director of the Ehlers-Danlos Society
Lara Bloom - The Ehlers Danlos Society
YouTube (Issues With My Tissues documentary )
07/12/2019 - 08 - Beat the Heat! Managing Symptoms When the Temperature Rises
07/05/2019 - 07 Bonus - What's in a Name - Why the Podcast is Called the Hypermobility Happy Hour
07/05/2019 - 07 - Paradoxes of EDS
06/21/2019 - 06 - Who, What, When, Where, Why and How of Having Hypermobility Disorders
06/14/2019 - 05 - Diagnosing Hypermobility Disorders including Hypermobile Ehlers-Danlos Syndrome
06/07/2019 - 04 - Causes and Influences of Hypermobility
06/01/2019 - 03 - What Does a Hypermobile Patient Look Like?
05/24/2019 - 02 - Low-dose Naltrexone
05/24/2019 - 01 - What is Hypermobility?