Find us on iTunes, SoundCloud, Spotify and Google Podcasts
10/21/2023 - 73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & More
https://jboccupationaltherapy.co.uk/
https://jboccupationaltherapy.co.uk/category/occupational-therapy/practice-educator-diary/
Jo Southall Instagram https://www.instagram.com/jboccytherapy/?hl=en
Jo Southall on The Rest Room Podcast: Pacing: A guide for people who’d rather be doing other things on Apple Podcasts, available at: podcasts.apple.com/gb/podcast/paci…i=1000550501384 (This is the first episode in a series)
Jo Southall's Youtube channel available at: www.youtube.com/@JBOccyTherapy
Jo Southall on workplace adjustments: www.youtube.com/watch?v=3yjyuGfxTY8
Jo Southall on occupational therapy: www.youtube.com/watch?v=_NnWsZszG6g
Article on the "Siberian Ice Princess" Mummified Remains: D.I. Abrams, M.D., Integrating Cannabis Into Clinical Care, Curr. Oncol. 2016, available at www.ncbi.nlm.nih.gov/pmc/articles/PMC4791148/ (see introduction)
10/06/2023 - 72 - Remembering Stephanie Aston - with Punteha van Terheyden
Punteha van Terheyden - https://www.vtfeatures.co.uk/
'Stephanie Aston died after doctors said she was faking her symptoms. I'm not even surprised' - Story by Punteha van Terhayden - https://www.mamamia.com.au/stephanie-aston-death/
People magazine article about Stephanie Aston - https://people.com/ehlers-danlos-new-zealand-stephanie-aston-dies-7966639
Another recent article by Punteha: https://metro.co.uk/2023/10/04/it-costs-a-bomb-but-cannabis-oil-has-allowed-me-to-stand-up-again-19589151/
06/30/2023 - 71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT)
https://www.bloomembody.com/free-resources
06/15/2023 - 70 - Highly Sensitive Persons, Neurodivergency, ADHD & Advocacy: Donna Irene
Instagram: www.instagram.com/chronicandcapable
TikTok: chronicandcapable
Dr. Rodney Grahame quote: https://www.the-rheumatologist.org/article/function-despite-pain/4/?singlepage=1
Dermal fibroblast article: https://pubmed.ncbi.nlm.nih.gov/36552803/
05/27/2023 - 69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More
TCAPP Website https://tcapp.org/
TCAPP Summer Pain Camp https://tcapp.org/summer-pain-camp/
Fundraiser for Documentary: https://openeyepictures.com/complicated www.pathwaystotrust.org/initiatives https://www.thecut.com/2022/10/child-abuse-munchausen-syndrome-by-proxy.html
When the Helping Hand Hurts: How Medical Child Abuse Charges Are Undermining Parents’ Decision Making Rights over Children’s Medical Care by Maxine Eichner https://aaml.org/wp-content/uploads/MAT102-1.pdf
05/20/2023 - 68 - Mitch Martow Update on Advocacy & More
Instagram: @mitchmartow
Instagram: @_bend_or_break_
03/20/2023 - 65 - Taylor Goldberg on Hypermobility
Instagram: @thehypermobilechiro
03/04/2023 - 64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & Diet
Instagram: @hypermobility.dietitian
02/22/2023 - 63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80
Instagram: @zebracornmd
account.allinahealth.org/providers/19405
01/31/2023 - 62 - Camille Schrier on Advocacy, Awareness & More
Instagram: @camilleschrier
12/12/2022 - 61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of Hypermobility
Instagram: @dr.melissakoehl.pt
www.chimera-health.com/hypermobile-fitness-course
12/03/2022 - 60 - Zinc & Hypermobility: Fiona Sullivan & Danielle Humphreys
Instagram: @fiona_my_eds (Fiona)
Instagram: @edsexpertpatient (Danielle)
11/27/2022 - 59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in Men
11/21/2022 - 58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining Hypermobility
Instagram: @hyp_access
Instagram: @audrewirtanen
Instagram: @ltuthall
11/12/2022 - 57 - Victoria Daylor: From Dancer to Pre-Med with hEDS
Instagram: @victoria.daylor
10/28/2022 - 56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & Diet
Instagram: @hypermobility.dietitian
10/26/2022 - 55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3)
10/07/2022 - 54 - Dr. Kevin Lasko on his Unique Approach to Treating Hypermobility, POTS and More
10/07/2022 - 53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and More
10/01/2022 - 52- John Ferman of EDS Awareness: EDS is Not All in the Head
EDS Awareness site - https://www.chronicpainpartners.com/
EDS is not all in your head article - https://www.chronicpainpartners.com/eds-is-not-all-in-the-head/
Healthcare Providers CME Programs - https://ehlers-danlos-cme.org/
EDS Leadership Program - http://www.leadeds.com/
EDS Awareness Newsletters - https://www.chronicpainpartners.com/eds-awareness-educational-programs-and-newsletter/
09/30/2022 - 51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're Hypermobile
Holding it All Together Book: www.holdingitalltogether.com/
Christie Cox’s Patient Advocacy: www.journey2joyous.com
Scheduling A Free Initial Consultation: calendly.com/journey2joyous/15min
08/20/2022 - 50 - Dr. Pradeep Chopra (Part 2) POTS, MCAS and More
08/06/2022 - 49 - Hannah Ensor (UK) on the HMSA, Stickman Communications, and More
HMSA: www.hypermobility.org/
Stickman Communications: stickmancommunications.co.uk/
07/22/2022 - 48 - Mitch Martow: Bend or Break Documentary and Life with EDS
Bend or Break Documentary on YouTube: www.youtube.com/watch?v=5toRNvFug3Y
Mitch's TedX Talk: www.youtube.com/watch?v=OMCPfVCAIM8
Mitch's YouTube page: www.youtube.com/channel/UCodj1ddsIFPN90-jyExje8w
POV Magazine article: povmagazine.com/bend-or-break/
Mitch's Bend or Break Blog: breakorbend.blogspot.com/
Instagram: @_bend_or_break_
Instagram: @mitchmartow
Facebook: mitch.martow
07/22/2022 - 47 - Dr. Jeffrey Boris on Two Decades of Treating POTS and Related Conditions
www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf
06/18/2022 - 46 - Dr. Pradeep Chopra: Overview on EDS and Pain (Part 1)
06/10/2022 - 45 - Isobel Knight (UK) on Decades of Work Studying and Writing Books on Hypermobility
Twitter isobelknight2
Comments from author Isobel Knight
05/31/2022 - 44 - Emily Rich OT on Occupational Therapy for EDS/POTS
Instagram: @emilyrichot
05/12/2022 - 43 - Libby Hinsley on her New Book on Yoga and Hypermobility
Instagram: @libbyhinsleypt
05/01/2022 - 42 - Kate Skinner, PT, Discusses Her Practice and Perspective
Instagram: @hypermobility_solution
04/08/2022 - 41 - Lilian Holm (@hypermobilitydoctor) Discusses Her Comprehensive and Unique Model of EDS Care
03/23/2022 - 40 - Exciting Research on EDS in Animals: Dr. Heather Gray-Edwards and Dr. Abby McElroy
Dr. Gray-Edwards' Lab at UMASS: https://grayedwardslab.umassmed.edu/
Instagram: @reed_eds
03/05/2022 - 39 - Dr. Megan Barker (@hypermobilityhealthcoach) and her Physical Therapy/Health Coaching Practice
Instagram: @hypermobilityhealthcoach
02/08/2022 - 38 - Ryann Mason (chronically_ry), Nurse, Advocate, and Miss Wheelchair Virginia 2020-2021
Instagram: @chronically_ry
12/31/2021 - 37 - Candidate Gene for hEDS? - Interview with Dr. Russell Norris & Cortney Gensemer
Norris Lab | College of Medicine | MUSC
MUSC researchers announce gene mutation discovery associated with EDS | MUSC | Charleston, SC
10/16/2021 - 36 - Discussing Disjointed: Interview with Dr. Richard Barnum - Psychiatric Misdiagnoses
10/01/2021 - 35 - Miss America (Camille Schrier) Discusses Life as a Pharmacy Student with EDS
07/13/2020 - 34 - Hypermobile Horses (and Dogs, and Cats, and More!): Interview with Dr. Abby McElroy, DVM
Cat with Ehlers-Danlos syndrome finds loving home with researcher who has the same condition
Instagram - Reed the Cat with EDS
06/05/2020 - 33 - Esther Gokhale Interview: Primal Posture
Gokhale Method® - Primal Posture™ for a Pain-Free Life
8 Steps to a Pain-Free Back - Amazon.com
Back Pain: The Primal Posture Solution DVD - Amazon.com
05/17/2020 - 32 - Coping with Coronavirus - Interview with Dr. Eric Phillippi
Ehlers-Danlos Society - What is Covid-19 (Coronavirus)
Medical Procedures of Wisconsin
04/15/2020 - 31 - Karina Sturm Interview
03/07/2020 - 30b - Interview with Dr Brad Tinkle - Part 2
01/24/2020 - 30a - Interview with Dr Brad Tinkle - Part 1
Dr. Tinkle available for Medico-Legal Consulting (for medical providers or attorneys only)
Amazon.com - Books by Dr. Brad Tinkle
12/15/2019 - 29 - Genetic Pearls: Interview with Paldeep Atwal, M.D.
National Center for Biotechnology Information Papers
12/06/2019 - 28 - Disability Accommodations & Finding Purpose After Tragedy
WI Legislators - Representative Jimmy Anderson (D-Fitchburg)
Americans with Disabilities Act - Access To Medical Care For Individuals With Mobility Disabilities
Americans with Disabilities Act - ADA Update: A Primer for State and Local Governments
Americans with Disabilities Act - ADA Update: A Primer for Small Business
11/29/2019 - 27 - Ranitidine Recall: What You Need to Know
11/23/2019 - 01 - Hypermobility 101 - re-released episode #1
2017 EDS International Classification
11/15/2019 - 26 - Troublesome Teeth: Interview with dentist Dr Liberty Boucher
Meet Dr. Boucher & the Team at University Hills Dental
11/01/2019 - 24 - Jeannie Di Bon Breathing Episode
10/28/2019 - 23 - Interview with Valerie, Cirque du Soleil performer
International Association for Dance Medicine & Science
10/18/2019 - 22a - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 1
22b - Patient Stories: Diplomacy & Double-jointedness - Interview with Melissa Wells, Part 2
10/11/2019 - 21 - Inflammation, Immunity and Ideal Nutrition: Interview with Jennifer Varga, M.P.H., R.D
www.wisconsinintegrativepainspecialists.org/jen-s-blog
10/04/2019 - 20 - Advocacy, awareness & alternative communication styles: Interview with Maggie Buckley
09/27/2019 - 19 - Menses, Mast Cells and Migraines. Interview with Lila Rosenthal, MD
Lara Briden - The Period Revolutionary
MigreLief® - nutritional support for chronic migraine sufferers
Recommended reading
The Last Best Cure - Donna Jackson Nakazawa
Period Repair Manual - Lara Briden ND
09/13/2019 - 17 - Joints & Jaws: Interview with Dr John Mitakides, about jaw pain, TMJ and options for treatment
Youtube - John Mitakides - Overview TMJ and EDS
09/06/2019 - 16 - Food, fatigue and function: Interview with Dr Jyothi Rao about the importance of gut health.
Dr. Jyothi Rao - Shakthi Health & Wellness
Finding Balance: Empower Yourself with Tools to Combat Stress and Illness
Canyon Ranch Resort, Tucson - Dr Stephen Brewer
Amazon.com - books by Stephen C Brewer, MD
The Canyon Ranch Guide to Men's Health: A Doctor's Prescription for Male Wellness
08/23/2019 - 14 - Interview with Jon Rodis, National Disability and Medical Advocate for Rare Disorders
Youtube - Social Security Disability Presentation
08/16/2019 - 13 - Interview with John Ferman, Founder of EDS Awareness (a.k.a. Chronic Pain Partners)
EDS Awareness aka Chronic Pain Partners
08/09/2019 - 12 - Mast Cells and Hormones: Interview with Dr. Tania Dempsey
Dr. Tania Dempsey | New York | Lyme Disease Specialist
Successful mast-cell-targeted treatment of chronic dyspareunia ... - NCBI
08/02/2019 - 11 - Interview with Dr. Lawrence Afrin, Expert in Mast Cell Activation Syndrome
Dr. Lawrence Afrin - Mast Cell 101 Presentation
Dr. Lawrence Afrin - Armonk Integrative Medicine
07/26/2019 - 10 - Interview with Jeannie Di Bon, Movement Therapist and Hypermobility Specialist
Jeannie Di Bon | Movement Therapist and Hypermobility Specialist
07/12/2019 - 08 - Beat the Heat! Managing Symptoms When the Temperature Rises
07/05/2019 - 07 Bonus - What's in a Name - Why the Podcast is Called the Hypermobility Happy Hour
07/05/2019 - 07 - Paradoxes of EDS
06/21/2019 - 06 - Who, What, When, Where, Why and How of Having Hypermobility Disorders
06/14/2019 - 05 - Diagnosing Hypermobility Disorders including Hypermobile Ehlers-Danlos Syndrome
06/07/2019 - 04 - Causes and Influences of Hypermobility
06/01/2019 - 03 - What Does a Hypermobile Patient Look Like?
05/24/2019 - 02 - Low-dose Naltrexone
05/24/2019 - 01 - What is Hypermobility?